Family Stories

“Wow what a wonderful week we had at your log cabin. It may just be 15 minutes away from home but it’s just what I needed. I look after my grandson’s full time; one is autistic and in heart failure and will shortly be listed for transplant. The little one has had a tracheotomy, pacemaker, … Read more

Toby was born full term, due to complications during birth, and his first few months of life, he now suffers from a plethora of life limiting conditions. Toby is a bright, cheerful, playful, and energetic little boy with a lot to deal with. Among other things Toby has been diagnosed with Severe Global Development Delay, … Read more

Mila has Spastic Quadriplegic Cerebral Palsy with severe dystonia. Mila has silent aspiration and is fed all nutrition via a gastrostomy. When she becomes ill (she is prone to chest infections) the infection can cause a dystonic storm. This can create respiratory distress due to the strength of the spasms in her neck. We have … Read more